BELOW THERE IS THE ENGLISH VERSION:
What do I need to trigger confidence? A website, a request for money, participating in some TV show, a couple of parents who are trying in good faith but can not give health to their children who have lost it. Sometimes, history is fresh in Rome, just a couple of friends and a reputation for high-level brokers to send too much money up in smoke (those of others!).
But then you wake from the dream and everything looks ugly, dirty, deceptive. You could spend a few adjectives in most but perhaps is best left to the reader - only to tell the story that we - the measure of the trial. Here we anticipate only that there is someone who claims based treatments such as cranial sacral massage therapy, speech therapy and oxygen therapy, are working to resolve several diseases. The items in Rizzetto Marilisa leave amazed.
"A parent of a child is willing to do anything. In his vocabulary there is no word impossible daily struggle to secure what should be the company to provide him with. We speak of a parent of a child trapped in a body that can not move and can not communicate like his peers, a discomfort that is always present and that for 365 days a year does not go on holiday. "
Things to say it has so many, that may be the Italian version of Erin Brockovich is very American, very likely. Determination and purpose are, moreover, very clear. As the character made famous by Julia Roberts, wants to let everyone know the trend of unnecessary journeys of hope "that in USA, Florida to be exact, are sold" by unscrupulous people who - he says - cyclically travels to Italy in search to which the desperate dream of a better life for their loved ones, affected by diseases varied: the West syndrome (epilepsy), the quadriplegia, Down's syndrome are some of the diseases they say they can treat and resolve. "
For two years the young di Jesolo (Ve), free is investigating two U.S. clinical therapies that have not scientifically approved. Site number 4001 Ocean Drive in Lauderdale by the Sea, Miami, it's the 'Therapies4kids' el''Ocean Hyperbaric Neurological Center'.
Press and national and local television offer plenty of space for parents that define these clinics as excellent without identifying his veracity. I think - says Marilisa - who are duped facts as it happened to me at first, given that many Italian local health authorities have paid back these unnecessary travel ... I've been three times in these clinics and during my first encounter Lapo Blade, coordinator of the Italians used the 'Therapies4kids', he told me that their treatments work so well for this reason that the local health authorities send the money directly into their bank accounts ".
But! "Just surf a bit 'in the sites of some Italian children - ie the web pages that parents put on the Net to search for contributions to the heavy costs they face - and we find that one of them has sent 46 thousand euro for three children, a 138mila total of € while another has covered 70% of total expenditure to Therapies4kids.
Lady Rizzetto, do a bit 'of history. Tell us about your initial involvement: it is necessary for us to understand the reasons for his 'supergrasses'. "Reading such comments on my return from my first trip made as an interpreter to a mother who had read about these clinics Blog Beppe Grillo, I begin to believe in the American dream, I am convinced that these therapies work and agree, by way of volunteer to lend my help translating their material from English into Italian, to organize a meeting in Jesolo, to realize their desire to open an office in Italy. I expose myself personally, my enthusiasm infects an army of good people who actually want to help so many with no-profit, children and adults, very lucky. He pushes me in particular, is one person who is born in a wheelchair since suffering from spastic quadriplegia. I met her at that meeting ... just tried to shake my hand and with difficulty said: 'The doctors say I do not understand anything, but they who do not understand me'. This person I owe all that I have found so far, she is giving me the position to do what I must! She who fights with his daily misadventures to get things that are used to carry out its daily needs, things that in most cases it gets. "
Go ahead. I ask cynically account of his disgust and how and what has started to investigate. "After the meeting, I met Leonard De Oliveira (owner of Therapies4kids), Leah Rodas (administrator of the Ocean Hyperbaric NC), Louis Rodas (assistant Ocean Hyperbaric but who claims to be independent doctor) with a professor at the General Hospital of Padua. The interview was inspired by a series of questions previously sent to them and to which De Oliveira respond after consulting with the one he calls 'the doctors' Ocean Hyperbaric: Louis F. Rodas and Daviglus George. The teacher tells them that their therapies work if you really had to prove it scientifically, and depending on the disease, try the video and written testimonies of parents and doctors. When asked 'Do you have something published in scientific journals?' Followed by a hasty reference to their web pages and a fleeting promise to send me material science, in fact accompanied by testimonies of doctors and professors. "
But that happens ... "What comes from Florida, zero, zero total! Then in April 2009 I decided to get back some of what promessomi, since it had also put in writing ... They had to proceed in a scientific way, do the Spect-scan - test that provides a color image of a person's brain before treatment hyperbaric; just repeating and noting a color change in the second picture you can say that there 'was an improvement before treatment and after - but I did not have track. Investigating I found that the few Italians who did the examination, they did all Fusion Institute. Depending on who book the same consideration to the Italian patient (or Ocean Hyperbaric Therapies4kids) the amount paid was different from a minimum of 900 to a maximum of $ 1,200, those who did the exam online direct booking without avail itself of the two clinics intermediary has paid only $ 800. The public health authorities who then paid are located in different regions, and certainly only now understand, because they know that in Italy the same test costs just € 36, or the cost of the ticket. "
The things he says are very serious. "You know, I asked myself if what I'm doing is tantamount to a kind of compensation that I owe to myself, after what I had volunteered for the organization ... but the truth is that I was shocked, saddened, shocked by 'accident in which a child died and his grandmother, while they were together in the hyperbaric chamber ... my grandmother passed away after 17 hours, 42 days after the baby! Everything, everything in this story was the biggest mistake of my life. "
And how is it still leaves ripples on its website, the video of the meeting of Jesolo? "I still hope that sooner or later the relevant authorities hear the exact words uttered by Rodas. He says he deals with all types of epilepsy and this may not be true because if inside a hyperbaric chamber a patient suffers a crisis no one can help. He then says not to have a real table with the criteria for disbursement and administration of oxygen based on their experience. In other words delivers oxygen to the eye. "
Who should bear in Florida, then, waste time and money. "Yeah! And I must say thanks to an employee of the Miami Dade Library, where I went to ask the equivalent of a business profile of these companies that ASL certainly have never asked before sending them large sums of public money. The document states that Therapies4kids not licensed throughout the State of Florida, and their employees Paiva Braz, Eddy Cremonese, Jac Cardoso have no license to practice in Florida in quality 'of therapists. Not only that: the Medical Doctor to be present when you are using the hyperbaric chamber, that George F. Daviglus, very often the owner is absent because of other medical studies made to disappear after 1 May 2009 accident that killed an Italian boy and his grandmother. If this had always been the thing would not have changed much, I found your CV online: just two weeks of training at the hyperbaric chamber! A tool with which to cure said as many as 41 diseases as approved scientifically. "
If Daviglus is absent, his substitute? "As a physician who acts Rodas is in fact a PAC within the State of Florida, that is, a server must be backed by a real Medical Doctor. You think Jesolo Milan and visited many children eligible to retain all their treatment in Milan was made to pay 100 euro to visit. "
Your message will deter from going overseas for a journey of hope useless. "Of course, because in Florida went all over Italy, just surf a bit 'and are children of Naples, Salerno, Grosseto, Latina, Lodi, Lecce, Taranto, Salerno, Cosenza, Savona, Milan, Venice, Livorno , Palermo, Messina, Turin, Varese .... "
Ok, enough. "No, not enough: Brescia, Rome, Bari, Padova, Lecco, Verona, Gorizia ... Sardinia, but also can not remember the province. Indeed, not all. Without my permission Therapies4kids created me an email and I never received password to use it. Anyone who has received an email from marilisarizzetto@therapies4kids.com This e-mail address is being protected from spam bots. You need JavaScript enabled to view it. goes to the police station nearest post and informs the IP address from which the match. "
So close? "For now ... but there is more that should be disclosed ".http://ww2.doh.state.fl.us/irm00Praes/PRASLIST.ASP#theBottom
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